Redwood City, CA
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Taylor Thoman - 9 months old

Update!

March 17, 2006 at 09:36 AM MST

Taylor has had two transfusions this week, one of platelets on Tuesday then red cells on Thursday. It is amazing how different she is after getting the red cells, she has so much more energy & spunk. She is covered in bruises that she got when her platelets were low, hopefully those will heal soon. She will turn 1 next week on March 22nd! Our next trip out to LA is March 28-April 1st.

10 March 07, 2006 at 02:02 PM MST

Feb 27th we flew to LA again, this time with Taylor and Kyle. We had taken three pictures of Kyle which showed a suspicious white "glow" from one eye. Dr. Murphree examined him and he does not have any tumors. (The glow happens sometimes when someone is looking to the side and not facing the camera). Anyway, good news that Kyle's eyes are fine, but we will continue to have him examined until we get his genetic tests results.

Taylor 's labs showed she was low on red cells, so she had a transfusion on Feb 28th in LA, then we had March 1st free with no appointments! It was so nice to have a day together with us all feeling pretty good. The weather was beautiful so we took a taxi to the LA Zoo at Griffith Park . We spent hours walking around in the sunshine and it felt so good.

Then back to reality. Thursday March 2nd Taylor had eye surgery, this time the Dr. injected chemo right into both eyes to attack the tumors. The tumors have gotten a bit smaller since last time, and where the tumors are dying there are scars forming, like calcium deposits that will be there permanently. Taylor then had IV chemo right after surgery, and had a little reaction which gave her a temp of 103 degrees, and her heart rate was fast at 177. Finally that all got got back to normal so she didn't have to be admitted. More chemo on Friday which went fine, then we all flew home on Saturday.

Today Taylor seems to be doing really well, she has only vomited once since we got back. She is taking Zofran for nausea which really helps. Her eyes are red & swollen which is normal, and we put eye drops in four times a day. She and Kyle both have colds so they have runny noses, coughing & sneezing... can't wait til that has passed! Our next visit is in four weeks, which means she won't have to be having surgery on her birthday so we are excited !!

9 February 24, 2006 at 10:29 AM MST

Yesterday's labs showed Taylor 's platelets were at 8,000 which is WAY low, so Mom took her to Primary Children's Hospital for another transfusion. They checked them again afterward and they were up to 96,000 which is awesome! (Good donor??) Everything else looked ok and rising, so we got to quit giving the GCSF injection at home til after the next round of chemo. And yes, Taylor waved to all the Doctors and Nurses. She seems to wave whenever she is happy, while she is getting her diaper changed, playing, eating or whatever so maybe it's not a "hello" or "goodbye" wave.

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